Monday, January 5, 2009

Blogstipation.

Or maybe I’m suffering from blogapathy. In any event, I’m not sure why my attentiveness to keeping the blog current has diminished. Sometimes you just gotta regroup and refocus, I guess. Anyway, my apologies again to those who feared the worst as a result of the silence. (And to confound matters, my email and internet access was down for a week during Christmas – some of you became increasingly concerned when emails bounced back.) Not to worry though – I’m still kicking – and kicking hard.

Despite some encouraging results, my participation in the immunotherapy clinical trial was terminated by the sponsoring pharmaceutical company because shrinkage of the tumors was not achieved after six infusions. So we now transition to Trabactedin chemotherapy, which has demonstrated impressive effectiveness against myxoid liposarcoma. The first infusion may be as early as later this week.

I’m sleeping well and not experiencing much pain to speak of. The greatest discomfort involves my swollen abdomen. Cecily persisted in scheduling an appointment to have my abdomen drained of fluid – the doctor removed 2.3 liters (0.6 gallons) of fluid on New Year’s Eve (about 5 pounds). Much relief . . .

I’ve asked Cecily to help maintain the blog so as to keep all of you informed as to status. Despite the fact that I’ve had a million needles stuck in me since August, I still feel as though we are at a relatively early stage in this fight. And that this battle will continue to be waged for quite some time. So regardless of how well I do at keeping the blog up to date, please be assured that the good fight continues to be waged.

8 comments:

Anonymous said...

Thank God. I've been checking your blog everyday and thought the worst. You are an amazing man. I can't tell you how much I admire you. Keep up the battle. All your warriors will be so happy to hear from you again.

Anonymous said...

I'm grateful for the update! Yes, we were a bit concerned after a month of no news. I probably speak for many when I say, keep blogging!

xo
Kim

Anonymous said...

Paul,
It's great to hear from you again! Keep fighting buddy!

Anonymous said...

Paul,
Happy to hear from you.
Layla

Anonymous said...

Welcome back, warrior! You've been missed.

Warmly,
Cindy

Anonymous said...

You have made MANY people happy with the continuation of your blog. There are hundreds of us that are cheering for you madly; though we may be far away in physical distance, in spirit we are right there in your back pocket. SOOO glad to hear you are still in the fight and kicking hard! This New Year's Eve, I raised a glass (maybe it was 2 or 3)to those hard working, hard fighting chimps. Love, Jan

Anonymous said...

Hola Pablo,
Just wanted to say Hi and we are all thinking of you. Keep up the fight ~ we are all still behind you!

xoxoxox

Imelda

Anonymous said...

Welcome back! Glad to see you blogging again...if only now and then. Also very glad to hear that you're fighting the good fight. Hope your holidays were wonderful. Love to you and Cecily, Jill